The holidays seem to be a very polarizing time of year. Some people worry they can't do enough, others worry they don't have enough, others miss loved ones...
To me the holidays are about happiness, no matter what holiday you practice they all have one basic backbone, bringing happiness to others. I think we all need to remember that. You don't have to spend a million dollars, you don't have to spend every waking moment trying to plan the perfect day... All you have to do is your best. Remember to many people simply receiving a hug brightens their day, to others simply hearing that they are a good person is all that is needed. Even to those that are missing a loved one, remember all they really want is to be happy. There is no need to break the bank or to kill yourself trying to do everything. If you can make one person smile your holiday season was a success even if that person is yourself. I hope everyone has a good holiday season. I prefer Merry Christmas but it does not matter what your preference is as long as you have a good holiday season. If nothing else treat yourself to your best memories because you deserve to be happy!
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Well it has been quite a while since I have posted a blog. I am going to try to get back to it and post much more than I have been. That should not be to hard as I have not posted anything in over a month.
I thought it was very humbling to admit to myself that I probably should start looking into the possibility of filing for disability. It was even more humbling for my doctor to tell me that he felt I was disabled. Surprisingly I was ok when I stopped working. It truly was the best thing for me and my family. I was taking some pretty big risks with all of my symptoms. Well I have been humbled one more time. It is one thing to talk about your limitations, it is another thing for someone else to document your limitations, but it is an entirely different thing when YOU have to document your own limitations. As part of my disability filing I recently had to complete a questionnaire about how my illness affects me. Needless to say as I answered each subsequent question and supported my answers with reasons it really sunk in on how much Narcolepsy affects my life every day. It is quite alarming to think that not that long ago I was a very independent person that almost never asked for help. This questionnaire outlined that there are countless things now, that I don't do or should not do because of my symptoms. And while there are still countless things that I can do, most of the time after I do those things I have to take a nap because I am completely wiped out. It is just amazing how much things can change in very little time. In June/July of last year I was diagnosed with Narcolepsy. At that time, I was tired all the time but ultimately I was still able to do everything I always did. Fast forward 18 months and my life is completely different. Not all the changes are bad. I am probably in the best shape of my life, (that is partially due to Narcolepsy as I can not stop moving or I go to sleep). I have much more time to spend with my wife and kids. But mostly I am kind of relearning how to live my life and figuring out what I can do with out completely wiping myself out. It is silly really, I can jog in place for hours at a time, but the second I stop, I quickly start to transition to sleep. If nothing else, one big lesson I have learned, is to take nothing for granted. Live your life to the fullest and enjoy every moment you have. Life is way to short to wait for tomorrow, if you can make something happen today, do it because you don't know what tomorrow will bring. |